Some of us mums & Em.
'Andy & Em' Andy being a good sport in Angel gear, bless him he doesn't know what he's let himself in for this year......
Roll on September, can't wait to see everyone again....magic.
Love to all.
Sue x
Some of us mums & Em.
'Andy & Em' Andy being a good sport in Angel gear, bless him he doesn't know what he's let himself in for this year......
Roll on September, can't wait to see everyone again....magic.
Love to all.
Sue x


This was me miles behind……..no wonder Chris always referred to her as his biker nan.
I’m off to the Lakes today to meet up with Elaine (Lainey) a good buddy who I met through the cf forum, we’ve met there about three times now and every single time its been raining, looks like today will be no exception, ah well we’ll just have to stay in the pub again.
Update.
Had a fab time at Windermere today, it was great to see Elaine and Julie, the sun came out now and again and we ate loads and loads, well I did anyway. Thoroughly enjoyed the drive, I'm once again well proud of my skills behind the wheel as I encountered many idiots on the journey but managed to stay alive despite their best efforts.
Just a wee note about my 'Toolbox' blog, as yet I have not come across a tool I felt the need to discard, just in case it came across wrong.
Much love all.

Chris had Cystic Fibrosis and was advised to go on the list for transplant in 2005, he was listed in February 2006, by which time he was virtually housebound. During the six months Chris was on the active list he spent most of his time in his bedroom, his social life ground to a halt, he suffered from panic attacks and from time to time depression. He had to be tube fed overnight because his appetite had completely gone due to illness and round the clock medication just kept him stable. Never once did anyone hear him moan though and when asked ‘how are you’ his reply would always be ‘fine’.
His call came on the 19th of August 2006 and his transplant went ahead on the 20th. He was a model patient and was home in 21 days. The difference was amazing, he was able to walk, shop, eat, cook and live the normal life of any other 24 year old. As his mum I can’t begin to explain how it felt to see him getting up each morning with a huge smile on his face, saying ‘how brilliant is this’ or ‘I feel amazing’.
Chris sadly passed away in May this year, he probably would have spent his last eight and a half months struggling to breathe and fighting continual depression and panic, instead he had two holidays with his mates, shopped, walked, danced, got stuck into the gardening and much much more, all thanks to somebody who didn’t even know him but gave him a gift.
A quote from Chris after transplant.
Say’s it all doesn’t it.
www.livelifethengivelife.co.uk

Although I was told there were to be no women allowed in there except by special invitation, I could pick the dĂ©cor, not because he’s kind though but because he couldn’t be bothered going shopping twice in one year. I ordered a sofa bed from argos as he’s intending to camp out regularly, anyway it said it was wine but when it came it was a definite pink which made me chuckle…hehe pink couch in man den. I suggested a bit of something to cover the windows and he panicked and sacked me on the spot. So lets recap, he has a big digital telly and a sofa bed and he reckons once he gets a fridge in there its complete, I still cant have a key though unless its to go in there and clean up.
We’re still doing ok, well I think we are, its never going to be easy and just talking about the cabin makes me cry, Chris was well pleased when John bought it and he had many plans for nights with the lads down there, no girls of course…yeah right.
P.S. John's turn for silly hat.




