Well Chris is still here and still holding his own despite many efforts by the bacterial and viral gremlins to get shut of him. There isn’t much more to tell you really, he did start to progress for a couple of days, then we were called in at 4am on Saturday morning as the doctors were concerned. Since then he’s been asleep again and stable, but he has a new fight on his hands as we’re more or less back to square one the doctor said.

Its hard to put into words what I’ve seen Chris go through in the last 5 weeks and I have to admit to wondering whether, if he was able, he would tell us all to leave him in peace. I don’t think he would because when he is awake he’s the smiliest patient on the unit and virtually every member of staff puts their head in to see him because they reckon he’s special, I cant argue with that. He’s fought to get through whatever’s come along so far, please keep praying he wins this one.

I’m home with John and Mike for the day and am about to get my scruffy kit on and do some gardening while John prepares us a feast on the barbeque, its lovely to be here, but not quite right, if you know what I mean.

Thanks again people for all the lovely messages and continuing support, I so miss all my buddy’s. Chris hasn't been able to read his messages from the forum yet but I have read the cards out to him and Ive printed the messages out ready for when he's a bit more with it.

Take care all.
Sue x

Just a very quick update as it’s a flying visit. I’m sorry for lack of news about Chris but its absolutely impossible at the moment to give any clear picture of a definite path. Many thanks to my good buddy for updating you all on her blog, however even since the last update the situation has changed yet again.

Chris had a good day yesterday, unfortunately there were several blips in the night and a big blip this morning, so he’s now sedated again and fairly stable.

Thanks a million for the continued support everybody when there’s anything more definite to tell you I’ll be sure to blog.

Sue x

A very stable night was yesterday mornings report, which I imagine is one up from stable I think, unstable being one down I imagine, or maybe there’s a nearly unstable before that…..who knows where the stableness chart starts and finishes.
Sorry if this seems flippant at such a time but it was an actual conversation that took place between me, Mike and his mate last night and it was a good tension reliever as it became more and more ridiculous.

I obviously wouldn’t be blogging in this manner if things weren’t a wee bit better and they are, just a tad mind you, its tiny steps at the moment but tiny is massive to us here.

He no longer sends his sats and blood pressure through the floor when they so much as look at him let alone comb his hair and they can turn him on his side without the panic button on the ward being pressed, infection markers are down to 19 and he’s only on 65-70% oxygen through the vent. This was yesterday.

This morning they reduced the sedation and also the amount of support he was receiving from the vent, so he is now doing a lot more breathing on his own and managing raise his eyebrows now and then, he also grinned about 4 times or had wind. The doctor came to speak to me this afternoon and said he’d had massive pneumonia but we were no longer fighting that as it had practically gone, what he has now is something called Adult Lung Shock Syndrome, that might or might not be the correct name but its close. Apparently Chris’s lungs have gone into shock and we’re not out of the woods yet he said.

I have an outfit ready for when he wakes up properly, it’s a grey head of hair a wrinckly mask and no finger nails and I didn’t even have to go out and buy it.

As always the team here are brilliant, the people who have prayed and sent many messages are something money could never buy and very stable is good for now.

Many thanks everyone.
Sue x

So this is what my house looks like!

I’m home for a few hours so thought I’d do a quick update. 12 days on Chris’s condition has continued to be worrying to say the least, things change few hourly rather than daily and each day there is at least one crisis. I’m in awe of the team, as they tackle everything that comes along and get him stable again time after time. They still don’t know for sure what they’re fighting and he’s now being treated for infection, (bacterial and viral), inflammation, rejection and a brand new infection this morning which sent his infection markers back up to 130 from 30 yesterday. He’s still fully sedated and on the ventilator through a tracheostomy with oxygen at 100%, however there has been an improvement in his heart rate and sats today and they’ve managed to stop him throwing random breaths in here and there so the ventilator can do its job and he can rest.

Massive thanks to all who have sent messages through many channels and also for all the prayers, you’re stars all of you. Rest assured you will all be among the first to hear when things start to look up.

Keep praying people.
Sue x